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hemophilianewstoday
1 天
Clotting factor proteins may affect bone cell activity, study finds
Clotting proteins missing or are defective in hemophilia can directly affect the activity of cells responsible for bone ...
hemophilianewstoday
2 天
One Drop’s impact on those with ultrarare bleeding disorders
Columnist Jennifer Lynne attends the recent One Drop conference, which focused on ultrarare bleeding disorders.
hemophilianewstoday
5 天
Assuring others I won't 'bleed out' with hemophilia
Hank Wolgamott, who has hemophilia A, and his mother, Amanda, live in Texas. They share dramatic questions they've gotten ...
hemophilianewstoday
5 天
Why I’m thankful for my delayed hemophilia diagnosis
Today, when girls and women struggle to obtain a hemophilia diagnosis and proper treatment, I am angry. We need to do better.
hemophilianewstoday
5 天
Prophylaxis tops on-demand hem A treatment in cost-effectiveness
FVIII replacement prophylaxis was more cost-effective than on-demand treatment for hemophilia A children and teens in China, ...
hemophilianewstoday
9 天
Elocta found superior to standard half-life products: Real-world study
Elocta was associated with better bleed control and fewer injections for hemophilia A patients in a real-world European study ...
hemophilianewstoday
11 天
Hemophilia patients more likely to be infected with SENV: Study
Researchers at the Birjand University of Medical Sciences analyzed the prevalence of SENV and related complications in ...
hemophilianewstoday
16 天
Hympavzi may be available as prophylaxis in US before year’s end
Hympavzi works by reducing the activity of a protein that stops blood clot formation, making it different from factor ...
hemophilianewstoday
3 天
When I was ill, I learned that factor infusion waits for nobody
Columnist Joe MacDonald recalls having bronchitis yet having no other choice than to continue his son's factor infusion.
hemophilianewstoday
4 天
In preparing for surgery, I’m borrowing strength from my sons
MacDonald feels anxious while preparing for spinal surgery, but recalls her sons' bravery in the face of hemophilia.
hemophilianewstoday
6 天
The benefits of pride and dignity, for people with disabilities in particular
Columnist Alliah Czarielle and her husband, each with challenging conditions, are aware of the benefits of pride and dignity.
hemophilianewstoday
5 天
Infusing hemophilia meds attracts ridiculous comments
Jennifer Lynne, who has hemophilia B, shares a ridiculous comment she gets when people find out she can start her own IVs.
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