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hemophilianewstoday
1 天
Clotting factor proteins may affect bone cell activity, study finds
Clotting proteins missing or are defective in hemophilia can directly affect the activity of cells responsible for bone ...
hemophilianewstoday
2 天
One Drop’s impact on those with ultrarare bleeding disorders
Columnist Jennifer Lynne attends the recent One Drop conference, which focused on ultrarare bleeding disorders.
hemophilianewstoday
3 天
When I was ill, I learned that factor infusion waits for nobody
Columnist Joe MacDonald recalls having bronchitis yet having no other choice than to continue his son's factor infusion.
hemophilianewstoday
4 天
In preparing for surgery, I’m borrowing strength from my sons
MacDonald feels anxious while preparing for spinal surgery, but recalls her sons' bravery in the face of hemophilia.
hemophilianewstoday
4 天
Infusing hemophilia meds attracts ridiculous comments
Jennifer Lynne, who has hemophilia B, shares a ridiculous comment she gets when people find out she can start her own IVs.
hemophilianewstoday
5 天
Assuring others I won't 'bleed out' with hemophilia
Hank Wolgamott, who has hemophilia A, and his mother, Amanda, live in Texas. They share dramatic questions they've gotten ...
hemophilianewstoday
5 天
Finding creative solutions to stop hemophilia bleeds
Jared Formalejo, who has hemophilia B, and his wife, Alliah, share about a time they used an unorthodox yet effective solution for a bleed.
hemophilianewstoday
5 天
Prophylaxis tops on-demand hem A treatment in cost-effectiveness
FVIII replacement prophylaxis was more cost-effective than on-demand treatment for hemophilia A children and teens in China, ...
hemophilianewstoday
5 天
Why I’m thankful for my delayed hemophilia diagnosis
Today, when girls and women struggle to obtain a hemophilia diagnosis and proper treatment, I am angry. We need to do better.
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